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Welcome from the Executive Directors | Mission & Vision | In the News | Outreach & Education

Welcome Jackie and Donna

The National Necrotizing Fasciitis Foundation is a 501c3 non-profit organization founded in 1997 by two survivors of necrotizing fasciitis, Jacqueline A. Roemmele, of Watchung, New Jersey, and Donna Batdorff of Grand Rapids Michigan.

Together, because of the lack of reliable information regarding the disease, it became their mission to do what they could to fill the void of information and to offer support for other victims and their families. What has since evolved in the past fifteen years of our existence has been truly inspiring and humbling. Hundreds of thousands of people from all walks of life, from all over the world, have reached out to the foundation when NF invades their lives. NNFF is the leading source of information available about this deadly disease, and has brought together hundreds of people who find kinship, support, and comfort in each other. They are proud to be fulfilling the foundation’s mission to make a difference in the understanding, awareness, diagnosis, and treatment of necrotizing fasciitis.

In 2000, the Jacqueline and Donna published "Surviving the Flesh-Eating Bacteria", through Penquin-Putnam, which was lauded by renowned experts in the disease as a comprehensive and accurate resource for the general public and medical professionals as well. It will be released very shortly.

Mission & Vision

to educate for public awareness
regarding recognition of symptoms and preventative measures;
to advocate research;
to offer resources; and
to offer support for those affected by necrotizing fasciitis, so that we may help save lives.

NF in the News

The National Necrotizing Fasciitis Foundation is often called upon to offer expert opinion and commentary regarding cases of NF that are covered in the media. We appreciate each and every opportunity to "get the word out". This past year, we have assisted the producers of many news sources including Dr. Oz, Dr. Drew, In Touch magazine, and many, many local and national venues.

Date Venue Title Link
March 17, 2015
CNN Money, CNBC
The National Necrotizing Fasciitis Foundation Names NovaBay's NeutroPhase as its Official "Flesh Eating Disease" Wound Cleanser
September 15, 2014
PR News Wire

Hispanic Heroes Honored in Fight Against "Flesh-Eating" Disease

August 20, 2014
Desert Sun

Eisenhower doctor successfully treats flesh-eating disease

August 12, 2014
Infection Control Today

National Necrotizing Fasciitis Foundation Warns About Vibrio Infections

July 2, 2014
Stockhouse
British Prime Minister David Cameron Warns of Growing Crisis of Antibiotic-Resistant Bacteria, But Wound Care Expert Dr. John Crew Points to Possible Solution
July 2, 2014
Bangor Daily News

‘Flesh-eating’ infection claims 2 Maine lives in 6 months, advocacy group calls treatment ‘tragically inadequate’

June 25, 2014
MarketWatch

The National Necrotizing Fasciitis Foundation Says Current Standard of Care for Flesh-eating Bacteria is "Tragically Inadequate"

May 19, 2014
Many venues

The National Necrotizing Fasciitis Foundation Launches Referral Initiative to Provide New Life-Saving Treatment to Victims of "Flesh-eating" Disease

November 20, 2013
Medical News

NeutroPhase irrigation therapy and NPWT help treat severe flesh eating and wound infections

April 16, 2014
National Geographic

How Harmless Bacteria Quickly Turned Into a Flesh-Eating Monster

View
October 25, 2012
Souderton Independent (PA)

Flesh-eating bacteria leads to amputation for Lower Salford man

July 23, 2012
Nurse Magazine

Necrotizing fasciitis poses extra challenges for patients, healthcare practitioners

May 24, 2012
US News & World Report

There's No Flesh-Eating Bacteria Epidemic, Experts Say

May 22, 2012
NBC News
Flesh-eating Bacteria Explained
May 18, 2012
CNN

Advocate: Story of rare bacterial infection raising awareness

May 17, 2012
ABC News
Flesh-eating Disease: Severe pain leads symptoms
May 15, 2010
Discovery Health
How Flesh-Eating Bacteria Works
April 24, 2012
M Live
Flesh-Eating Bacteria Survivor Donna Batdorff
April 28, 2009
Oprah Winfrey Show Dr. Oz: Deadly Superbug and Flesh-Eating Bacteria

Outreach & Education

Probably the most critically important mission of NNFF is outreach and education - for both the general public and medical professionals. Recognition of early symptoms is the key to saving limbs and lives. Guest speaking is one way we are fulfilling this mission.

jroemmele@aol.com

 

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