The NNFF guestbook is the heart of our foundation -- so many people have found kinship and support in each other! Please spend some time reading through the entries made throughout the past three years (click icon on right). Talk about your experience! Keep in mind that if you have an urgent question, you should email Donna or Jackie as we do not review the guestbook on a daily basis!

My name is: Mary

Comments about the web site: Everything looks great!!

I'm from: New York

Email: - mlathron@juno.com

How I found the page: - Donna told me about it!

My name is: Richard D. Boggan

Comments about the web site: Our daughter is Rebekah McVay. The last four years have been very traumatic but the Lord brought us through. In her memory, we would like to be involved...if anyone in the CSRA (Georgia or South Carolina area) has suffered similar tragedy, please contact us at rdboggan@csranet.com.

I'm from: Martinez, GA 30907

Email: - rdboggan@csranet.com

How I found the page: - Personal letter from Donna Batdorff

My name is: Kathy Emrick

Comments about the web site: I got to this site looking into infectious diseases. My husband had necroticing faciitics two years ago this past April and almost died. He was hospitalized for 17 days and had 2 surgeries and a skin graft. I would very much like to add his story to your list.

I'm from: Van Wert, OH. USA

Email: - rmeebw@bright.net

How I found the page: - looking into infectious disease

My name is: Tim Phelps

Comments about the web site: I am doing a term paper on the bacteria. Thanks for the info.

I'm from: MD

Email: -

How I found the page: - Yahoo

My name is: Vincent Sanchez, Jackie's son.

Comments about the web site: Mom, I'm happy that you survived. You're the best mom. We like seeing you so much now, and are very proud of you. Even though you think you're scarred and ugly sometimes, we think you are a fairy princess. I love you.

I'm from: Niantic, CT

Email: -

How I found the page: - Mommy

My name is: Joe Brennan

Comments about the web site: Best wishes to you as you undertake this important work.

I'm from: New Orleans, LA

Email: -

How I found the page: - referred by Donna B.

My name is: Kellie Kennedy

Comments about the web site: Boy, am I glad to have found you! I contracted NF two months ago and I am at the tail end of my recovery; it was a mild case, compared to others!

I'm from: Northern New England

Email: - KellieJSK @ AOL

How I found the page: - I was e-mailed by NNFF...it was a good mail day!!

My name is: Juanita G. Oclaray

Comments about the web site: I am a student at the University of Phoenix in Honolulu, BSN program. We had to write a paper on something interesting & NF has always fascinated me. I was amazed at the information available on the net!

I'm from: Waianae, Hawaii

Email: - oclaray@hula.net

How I found the page: - search from Yahoo

My name is: Tyson J. Boudreaux

I'm from: New Orleans, LA

Email: - tboudr1@lsumc.edu

How I found the page: -

My name is: Susan West

Comments about the web site: I am in the process of recovering from NF. After 2 months in ICU at Brigham and Women's Hospital in Boston I am back to work (part time) and looking forward to continued good health. I have lost 50% of the mucscles in my leg. Have nothing in my knee, and have a very large skin graft on my abdomen, but I survived, and kept my leg. I have a question. Does necrotizing fasciitis begin at thefirst signs of infection, or does it become NF only if not treated properly in the first place? I too was told I had the flu, but thankfully not ignored quite so long as Jackie. If you know the answer or where I might find the answer, please email me at swest6602@aol.com Thanks for any help you can give me and good luck.

I'm from: Boston, MA

Email: - swest6602@aol.com

How I found the page: - search thru aol

My name is: Nancy Soto

Comments about the web site: I have been searching the internet since last August trying to find information on Group A Strep. I just found this web site last nite the 14th of June!! Well, I'm so glad I found this Organization. I don't have a story with a happy ending--My daughter, Pamela Renee Berkemeier, died on December 23, 1995 from Group A. I wonder if anybody knows that another death accoured from Group A? I wonder if the CDC ever wrote it down. The story is so filled with all kinds of mistakes that were made by too many. I would like to, in some way, be a part of the education of the medical world, and most important, to help spread the word to the popula- tion that we can't rely on the medical profession to always KNOW what is wrong. We must not be afraid to ask questions and quit being so trusting. Are there any local chapters forming? Or is that on the agenda for the future? Could I be put on the E-Mail list? I am Happy for the survivors! Unfortunately Group A has created two catagories, Winners,-and those that lost the battle. Thanks for being there!! Nancy

I'm from: Phoenix, AZ

Email: - I'm not sure the exact address-take note when this arrives.

How I found the page: - Typing in "Group A Strep" on one of the first sign on areas

My name is: John Shimashita

Comments about the web site: Thank you so much for the brief outlook about the disease. I hope everyone would take advantage of the information given here, which will give the public a more understanding about the bacteria.

I'm from: Long Beach, CA

Email: - shimohr@aol.com

How I found the page: - yahoo.com

My name is: Kevin McGarry

Comments about the web site: Jackie and Donna, Your web site is quite the eye opener. I wish you both the best of luck.

I'm from: Mystic, CT USA

Email: - kmcgarry@klewin.com

How I found the page: - referral

My name is: jeff black

Comments about the web site: Jackie, that was a sad story. I'm glad you are getting better It sounds like you went through Hell and back.

I'm from: Lawrence Ks.

Email: - black98@ibm.net

How I found the page: - Yahoo health

My name is: Heather M westlake

Comments about the web site: I am writing a paper for my microbiology class and found it very difficult to find info on this subject. Thanks for the great material!!

I'm from: Roanoke ,Va

Email: -

How I found the page: - Webcrawler

My name is: Mandy

Comments about the web site: It was a very intresting and educational web page

I'm from: Cedar Lake, Indiana United States

Email: -

How I found the page: - Surfing the net

My name is: Krystal Cathcart

Comments about the web site: I would like more info and to be on your mailing list. Please send info regarding this disease. I am a college student studying to be a epedimiologists, and I am intersted in learning about infectious diseases. Thank you very much.

I'm from: Los Angeles,Ca

Email: - kcathcar@haywire.csuhayward.edu

How I found the page: - Yahoo

My name is: Amelia Martinez-Doggwiler

Comments about the web site: I congratulate you on this very helpful web site. Without the information I found here I wouldn't know the reality of this very dangerous disease and help a friend of mine that has been diagnosed two days ago. Please keep the good work!

I'm from: New York, USA

Email: - AmeliaMDoggwiler@Worldnet.att.net

How I found the page: - searching for information for a close friend diagnosed with flesh-eating bacteria

My name is: Frustrated4u

Comments about the web site: Jackie, I admire your courage and glad you referred me to the website. BEAUTY does come from within. You are a beautiful person and so is your friend Donna to be concerned for others and share your stories.

I'm from: Missouri around STL

Email: -

How I found the page: - Jackie, on Yahoo chat

My name is: Dee Millien

Comments about the web site: Mother-in-law diagnosed w/necrotizing fascitis, in hospital at present

I'm from: Kenner, LA USA

Email: - DMillien@www.aol.com

How I found the page: - aol.search

My name is: Bob Monaco

Comments about the web site: Wanted to find out more about the disease because a friend from work's wife got it and barely survived.

I'm from: Charlestown, RI

Email: -

How I found the page: - yahoo

My name is: William Smith

Comments about the web site: N.F. survivor. I was initially misdiagnosed. This site and foundation will save lives through information exchange. Knowledge is power.

I'm from: Biloxi, MS

Email: - Bo@datasync.com

How I found the page: - search