The NNFF guestbook is the heart of our foundation -- so many people have found kinship and support in each other! Please spend some time reading through the entries made throughout the past three years (click icon on right). Talk about your experience! Keep in mind that if you have an urgent question, you should email Donna or Jackie as we do not review the guestbook on a daily basis!

Feb 1, 1998 - 15:42

My name is: Rob Shipp

Comments about the web site: I am doing a presentation on this disease for a nursing class and found it very helpful:-)

I'm from: Sayre, Pa

Email: - shippr@yahoo.com

How I found the page: - yahoo.com's search

Feb 1, 1998 - 22:01

My name is: jessica spurlock

Comments about the web site: I am doing a research project for a junior-college health class and I chose to do it on the flesh-eating bacteria, or neocrotizing fasciitis. I printed some information from your web page to use as a reference. Thank you very much for the information. Jessica Spurlock, CA

I'm from:

Email: - hnjhpc@mail.talis.org

How I found the page: - yahoo search engine

Feb 2, 1998 - 13:38

My name is: Jean Hadley

Comments about the web site: My father has necrotizing fasciitis. He is still in intensive care. He had a chill on friday, went to the hospital on monday, they operated on tuesday. Its now Monday again and he is still on a veentilator. He is 83 and has been in good health. If he survives what can we expect?

I'm from: usa

Email: - jehadley@evansville.net

How I found the page: - looked up nedrotizing fasciitis

Feb 3, 1998 - 04:12

My name is: Sheri Hardin

Comments about the web site: Hello NNFF, I was just checking out what was new in your website. You girls are doing a great job. I know that you have given me the strength that I needed to get through all the emotions and the scars that I have had to deal with because of NF. I hope that I was some help to the two families that I emailed tonight. You girls have been great and I would love to help anyone who has had NF or has had a family member get NF. I want to give back what you were able to give me when I needed you.You've helped me to except myself as I am. And believe me it's been a very bumpy road to travel.

I'm from: Oregon

Email: - jrch@cvc.net

How I found the page: - I was checking the new entries to see if I could help anyone. Like Jackie helped me. Thanks Jackie!

Feb 3, 1998 - 04:16

My name is: Sheri Hardin

Comments about the web site: Hello NNFF, I was just checking out what was new in your website. You girls are doing a great job. I know that you have given me the strength that I needed to get through all the emotions and the scars that I have had to deal with because of NF. I hope that I was some help to the two families that I emailed tonight. You girls have been great and I would love to help anyone who has had NF or has had a family member get NF. I want to give back what you were able to give me when I needed you.You've helped me to except myself as I am. And believe me it's been a very bumpy road to travel.

I'm from: Oregon

Email: - jrch@cvc.net

How I found the page: - I was checking the new entries to see if I could help anyone. Like Jackie helped me. Thanks Jackie!

Feb 3, 1998 - 06:11

My name is: Mauree Heath

Comments about the web site: Dear Jackie and Donna, haven't been here in awhile and just wondered how things are going.How is the book coming along?Check my entry, I have knew E-mail adress. Take Care, Maureen

I'm from: Fort Myers Fl.

Email: - hianano@hotmail.com

How I found the page: - bookmarked!

Feb 4, 1998 - 13:53

My name is: Cyndy Aldous

Comments about the web site: My NF experience began three years ago as a slip and fall with massive bruising in my left lower leg. The course of my illness was slow and rocky. I kept my leg and my life, but have some loss of muscle and lymph system in the affected area. The best decision I made during my recovery was to insist upon physical therapy. Not only did it build strength, but my therapist also broke down scar tissue that had formed in the area. It took me a full two years to recover. Please let me know if I can help in any way.

I'm from: Encinitas, CA USA

Email: - aldous@cts.com

How I found the page: - Searching the net

Feb 4, 1998 - 18:34

My name is: Cheryl & Brad

Comments about the web site:

I'm from:

Email: -

How I found the page: -

Feb 4, 1998 - 18:38

My name is: Cheryl & Brad

Comments about the web site: Not nearly enough gruesome pictures, I'm afraid. What about dear old luke? How's he doin'?

I'm from: Kingston, Jamaica, outside Babylon, mon.

Email: - no thanks

How I found the page: - random guessing & plenty of rum

Feb 5, 1998 - 08:55

My name is: Joan M. Stehn, Medical Librarian

Comments about the web site: This is my fourth time researching Necrotizing Fasciitis for patient care. The health care providers who requested information include a family practice physician, an orthopaedic surgeon, an infection control nurse, and a podiatrist. I met the patient after he underwent several surgeries and was being discharged. I was amazed when I saw the extent of the condition from his toes to the thigh. Your site is commendable.

I'm from: US Military Academy, West Poin. NY

Email: - joan_stehn@smtplink.westpoint.amedd.army.mil

How I found the page: - web search

Feb 5, 1998 - 15:07

My name is: Rodzie Rodriugez

Comments about the web site:

I'm from: Weslcao,Texas U.S.

Email: -

How I found the page: -

Feb 5, 1998 - 15:09

My name is: Rodzie Rodriugez

Comments about the web site:

I'm from: Weslcao

Email: -

How I found the page: - Project

Feb 5, 1998 - 15:10

My name is:

Comments about the web site:

I'm from:

Email: -

How I found the page: -

Feb 5, 1998 - 18:35

My name is: Pamela Dorschel

Comments about the web site: I have personal knowledge ofthe Susan Dougherty case. I am friends with her first cousin. This was an avoidable tragedy. Her family was and is still devistated. Dr. Sanko was negligent and has admitted so. Strong Memorial Hospital has paid off the family. We put our trust in those who care for us in our hospitals and when they don't live up to that trust, tragedys happen. I am a health care professional and I know that medicine is not an exact science but what happened to Susan could and should have been avoided.

I'm from: Rochester, NY

Email: - jtgrp@aol.com

How I found the page: - Valerie D'Angelo (Susan Dougherty's cousin)

Feb 5, 1998 - 23:21

My name is: Ryan H.

Comments about the web site: Thank you for this information regarding this rare but often tragic disease. Education is the key to increasing awareness about this bacteria and ensuring the proper medical attention is obtained to reasearch and solve this mysterious disease. Keep up the good work!

I'm from: Storrs, CT United States of America

Email: -

How I found the page: - Searched for info on this disease after seeing a woman in Connecticut die from it in 10 days.

Feb 6, 1998 - 03:03

My name is: Jack Cox

Comments about the web site: I found this page after my father was diagnosed with N.F. Jan. 16 1998. He is still in the hospital recovering. There was no apparent trauma, his first symptoms were tender places on his face, and a very sore pimple on the inside of his nose a couple of days earlier. Perhaps his eyes were the point of entry. He had slight fever, however, he never had any of the other flu-like symtoms. The infection attacked his eyes swelling them shut in a matter of hours. The wonderful doctors at Boulder Community Hospital got him on IV antibiotics right away and saved his life. He has had no surgery and his eyes themselves were not harmed. By January 25, 1998, the swelling was down enough for him to see and watch the Super Bowl. Ironically, he arrived at the hospital for a scheduled appointment to have an angiogram done. The swelling had already started and the doctors admitted him and took immediate action. When I found out what he had I searched and found this site. Apparently my dad had a minor case (thanks to the doctors) as I read about many with amputations and muscle loss. As of this writing, Feb 6, 1998, puss is still draining from his eye lids. The scabs are healing from his eye lids and under his eyes. For general information, the doctor told me there were two other cases at that hospital in the last year, both fatal. He said that the other cases started in their hands and progressed too far for treatment by the time they came in. I would like to know if there is a database to try and find common characteristics, etc.

I'm from: Ventura, CA

Email: - j.cox.ventura.ca@worldnet.att.net

How I found the page: - searching for answers from my dad's hospital room

Feb 8, 1998 - 20:24

My name is: Kathleen Mancuso RN

Comments about the web site:

I'm from:

Email: -

How I found the page: -

Feb 9, 1998 - 14:59

My name is: The NORM

Comments about the web site: I really respect your honoring those who have died from this crappy disease, I better not say this because GOD might shoot lightning or something for saying it, oh well. well, just wanted to say that I to have lost a very important person in my life to this horrble disease. goodbye!!

I'm from: ????????????????

Email: - ?????????????

How I found the page: - cool

Feb 11, 1998 - 14:28

My name is: Curtis Edwards

Comments about the web site: I cought the bacteria last year over Labor Day. It happened one day while I was on leave from school. The doctors ended up taking the majortiy of the skin off the top of my foot and up the side of my leg as well. Anyway, my sister said she got in touch with the people here at the foundation and they wanted to hear from me. I spent about 2 months in the hospital,but my recovery is going very well. I accept what happended to me and am trying to get on to bigger and better things. If anyone would like someone to talk to then they can always email me. Untill later, peace,love, and happiness.

I'm from: Grand Bay, Al Attend school at West Point, New York.

Email: - x01317@exmail.usma.edu

How I found the page: - Looked up info. after I got out of the hospital.

Feb 13, 1998 - 11:55

My name is: Phyllis Pircher

Comments about the web site: Thank you for this site. This is such a frightening illness! It seems to affect relatively young people [ maybe they are the only ones who rate newspaper attention.] I am going to learn much from your site. Thank you.

I'm from: La Canada, California USA

Email: - ppircher@earthlink.net

How I found the page: - Alta Vista search

Feb 15, 1998 - 10:51

My name is: Joan Lansberry

Comments about the web site: Thanks for providing this information. I'll be changing a lot of my habits now.

I'm from: Casa Grande Arizona, USA

Email: - gallae@casagrande.com

How I found the page: - a link off of Starnet story about a Tucson woman who had this illness.

Feb 15, 1998 - 23:23

My name is: Gary Stehr

Comments about the web site: As a paramedic, I recently attempted to resuscitate an individual who was described as having similar symptoms as mentioned on the web page. As he was not breathing and had no pulse, I was busy attemting to revive him and did not pay any attention to the scarred tissue on his arm. Unfortunately, he did not survive. He was diagnosed a week earlier with a strained chest muscle from pushups. I await the autopsy results and notification from the Board of Health as to what followup I need, if any February 15, 1998

I'm from: Long Island, NY, USA

Email: - gstehr@worldnet.att.net

How I found the page: - yahoo search

Feb 16, 1998 - 21:51

My name is: Kerry Conley

Comments about the web site: I work on a surgical floor at Duke and since Duke University Medical Center is one of the few places in the area that has a hyperbaric chamber, we may see more patients with this. The number of patients we see may be more with people traveling long distances. Most of the patients I've seen have come in with little to no past medical history and have said, "This was just a pimple a week ago, then the next day it was the size of a golf ball, then the next day it was the size of an orange, then the next day it was the size of a grapefruit, etc" Most pateints I've seen have a relatively small amount of damage compared to what NF can do. I plan on sharing medical information with other nurses that I work with so that we will be able to give better nursing care. Thanks for writing to me and if I can help you or your Foundation in the futuer let me know.

I'm from: N Carolina

Email: - Kco7588592@aol.com

How I found the page: -

Feb 17, 1998 - 02:10

My name is: christopher

Comments about the web site: good info

I'm from: united states

Email: - hayhay85

How I found the page: - searching

Feb 17, 1998 - 15:38

My name is: Echo Smith

Comments about the web site: I have heard so much through the news about how this disease is affecting us, but nothing 'about' the disease. So I searched the net and found you. Your facts and the terms that you used were very clear and helpful. I myself know one person who was 'killed' by this disease. He woke up, not feeling to good, and died an hour later....

I'm from: Wildomar, CA, USA

Email: -

How I found the page: - search through Yahoo!

Feb 17, 1998 - 20:53

My name is: Don Minut

Comments about the web site: My wife, Cobin is currently hospitalized with NF in Riverside General Hospital, Riverside, CA. After a little over a week they want to send her home due to no insurance with most of her leg thigh 12"x8"x3" open with no skin. They want me and my 14 year old daughter to change the dressings and look for further signs of the return of the infection. Any help regarding wound care would be appreciated and any information on the hospital discharging her for not having insurance. (They don't come out and say that but as soon as they found out she only has $1200.00 of total coverage, she is being sent home). How much does this cost anyway?

I'm from: Riverside, CA, USA

Email: - donminut@aol.com

How I found the page: - aol search engine

Feb 17, 1998 - 22:08

My name is: David Maggart

Comments about the web site: Your web page was very helpful in a report I had to do for school

I'm from: Benicia California, USA

Email: - VCmaggot@aol.com

How I found the page: - www.altavista.com

Feb 18, 1998 - 01:21

My name is: Nordyck

Comments about the web site: I believe that this site will be useful for everyone has any kind of health problems. Over the years, my partner and I have studied various forms of alternative health fields, and we have help lots of people with minor to suvere medical conditions to "feel better" (Certain agencies doesn't allow the words of "GET WELL" to be used") In the site, we feature different articals about health. If anyone has a question or wants to learn more about a particular topic please let us know. Our goal is that this site will be used to help anyone who is in need to "feel better".

I'm from: LosAngeles

Email: - http://www.internetconect.net/~probert

How I found the page: - browsing

Feb 19, 1998 - 00:05

My name is: Rocky Baker

Comments about the web site: My brother in law has contacted this dreadful disease and is still currently fighting for his life in ICU. I am truly thankful for the excellant treatment he is receiving in the Royal Columbian Hospital here in Canada. The hard part to understand is how he came in contact with this bacteria which causes such destruction to a very healthy person up till now. I'll try to keep you updated on the situation.

I'm from: Surrey, B.C., Canada

Email: - rockyb@direct.ca

How I found the page: - Net search results for Necrotizing Fasciitis

Feb 19, 1998 - 06:45

My name is: William E Yates

Comments about the web site: My father just died from this on 2/13, 1998. Started at a nursing home in lower leg. He died the next day. Lots of questions - how do He get it? Is it contages? How does it travel? etc? If you can send me any information, Pictures etc. I would like to know more about it. Please note I AM NOT preparing litigation, I just want to know more about it. Thanks, William E. Yates 1736 Middle Bellview Road Mansfield, OH 44904 My father was W. Glenn Martin of South Haven, Michigan.

I'm from:

Email: - ya.yates@juno.com

How I found the page: - Did a search on "flesh eating bact"