The NNFF guestbook is the heart of our foundation -- so many people have found kinship and support in each other! Please spend some time reading through the entries made throughout the past three years (click icon on right). Talk about your experience! Keep in mind that if you have an urgent question, you should email Donna or Jackie as we do not review the guestbook on a daily basis!

Feb 1, 1999 - 17:27

My name is: Tara J. Rayan

Comments about the web site: I am so glad that there is a web site containing this information, thank you.

I'm from: Olympia, WA USA

Email: - joelrayan@earthlink.net

How I found the page: - searched for it

Feb 2, 1999 - 18:31

My name is: Josh

Comments about the web site: I enjoy this sight very much.I have to do a school project on a disease and I chose necrotizing fasciitis because I had originnaly thought it to be very interesting,but this sight has taught me so much more in plain english.

I'm from: Montreal,Canada

Email: -

How I found the page: - Yahoo search

Feb 2, 1999 - 19:09

My name is: Laurel Fretz

Comments about the web site: I am a Human Physiology teacher of high school students in California. If you would like to send my class any information about NF...we would appreciate it. Human Physiology Students c/o Mrs. Fretz Arcadia High School 180 Campus Drive Arcadia, CA 91007 e-mail address: lfretz@ausd.k12.ca.us Thanks.

I'm from:

Email: -

How I found the page: -

Feb 2, 1999 - 22:39

My name is: Tom Korznat

Comments about the web site: I am currently compiling information for a research paper in my microbiology class on this topic. Your website has greatly helped me in understanding this terrible disease and I appreciate it very much.

I'm from: Middletown, CT

Email: - tkorznat@snet.net

How I found the page: - Internet search on Excite search engine

Feb 3, 1999 - 09:24

My name is: Brooke Martin

Comments about the web site: I am doing a report and oral presentation for my Microbiology course. "Flesh-eating" disease is what I was assigned. Thank-you for all of your informative information to equip me for my report!!!

I'm from:

Email: -

How I found the page: -

Feb 3, 1999 - 09:27

My name is: Brooke Martin

Comments about the web site: I am doing a report and oral presentation for my Microbiology course. "Flesh-eating" disease is what I was assigned. Thank-you for all of your informative information to equip me for my report!!!

I'm from: Waynesboro, PA

Email: -

How I found the page: - From my teacher

Feb 4, 1999 - 01:36

My name is: Brenda Cross

Comments about the web site: One of my close friends husband died this am (2/3/99) of this diease. The Dr's thought he just had a sore arm and sent him home with Tylenol on Friday 1/29/99. By Monday 2/1/99 he was airlifted to UCLA Medical center and died today. So sudden and so misdiagnosed on Friday.

I'm from: Rancho Cucamonga, California USA

Email: - I do not have at this time

How I found the page: - Yahoo search

Feb 4, 1999 - 01:40

My name is: Brenda Cross

Comments about the web site: One of my close friends husband died this am (2/3/99) of this diease. The Dr's thought he just had a sore arm and sent him home with Tylenol on Friday 1/29/99. By Monday 2/1/99 he was airlifted to UCLA Medical center and died today. So sudden and so misdiagnosed on Friday.

I'm from: Rancho Cucamonga, California USA

Email: - I do not have at this time

How I found the page: - Yahoo search

Feb 4, 1999 - 18:19

My name is: Rachel

Comments about the web site: I found your page to be very informative and well written, Iam a University student at the University of Manitoba and your web page really helped me with a report I had be planning on necrotzing fasciitis, unfortunately, I am not able to give a donation as of yet because of tuition fees, but I want to thank you for keeping the community informed about such an important topic. Thanks!

I'm from: Winnipeg, Manitoba.Canada

Email: -

How I found the page: - It was the first page to pop up on my browser

Feb 5, 1999 - 14:08

My name is: Susan T. Jones-Alba

Comments about the web site: As I write this, my uncle is battling this terrible condition. His left hand was amputated on Sat., Jan. 30th and he continues to be maintained on a ventilator, in the Intensive Care Unit of a local hospital. This webpage has done an excellent job of explaining NF and I will share it with my aunt and others that I know. It is amazing to me that many physicians are so woefully ignorant of this disease. The efforts of the persons responsible for disseminating this vital information are commendable and deserving of support from all of us who have been touched by NF. My family and I will send a contribution.

I'm from: Phila., Pa

Email: -

How I found the page: - Search engine (Altavista.Com)

Feb 5, 1999 - 16:11

My name is: T. N. Nguyen

Comments about the web site: This is a very educational and informative site!

I'm from: Boston, MA

Email: -

How I found the page: -

Feb 6, 1999 - 03:32

My name is: Richard Chan

Comments about the web site: I contract flesh eating infection in mid July of 1984. It was a rather lengthy ordeal for me. Having my leg amputated below the knee than above the knee.

I'm from: Vancouver, B.C. Canada.

Email: - rchan@uniserve.com

How I found the page: - KOMO4NEWS.com did a story on Christopher Junk and it brought back painful memories.

Feb 6, 1999 - 20:59

My name is: Ken Turner

Comments about the web site: Read Your Story With Interest. I am a survivor of the dreaded Necroting Fasciitis which affected me on the left side of my neck and shoulder. I contracted the bacteria after undergoing major surgery for the removal of a carcinoma in my lower right mandible and the subsequent reconstructive surgery.My bodyweight went down to six stone(84lbs) at the peak of the infection and it was generally thought that I would not survive. The bacteria melted the bone graft in my chin and ate a good portion of my neck with it. It took ten months before my body was actually clear of the bacteria and during this time my jaw was pinned together with steel screws and pins. Eventually ,when it was sure that I no longer had the bacteria in my body I underwent Construtive surgery on my chin again using bone taken from my hip and muscle from my chestThat was ten years ago and now I am as fit as ever I was and my weight is once more up to 168lbs.My hobbies include walking the coastal paths of Britain.

I'm from: South Wales, United Kingdom

Email: - ken.turner@net.ntl.com

How I found the page: - Placed the words 'Necrotising Fasciitis' in the search eng.

Feb 7, 1999 - 13:35

My name is: Albert Driesen

Comments about the web site: I am a survivor of this deadly deases and would not be here today,if it was not for my loving wife who would not leave my side. Thank you very much for starting this web site. My story and donation will be coming soon.

I'm from: Ponoka Alberta, Canada

Email: - adriesen@telusplanet.net

How I found the page: - surfing

Feb 8, 1999 - 14:15

My name is: TerRessa Curtius

Comments about the web site: My Father just won his fight with this horrible 'Flesh Eating Bacteria' in the process he lost all the flesh starting under his left arm and ending just at the bottom of his hip. He still has a long road of skin grafts and therapy. His bacteria started when he had abdominal surgery, we are one of the lucky one's. And my heart reaches out to anyone who has lost a loved one to this bacteria or has been through the terrible ordeal of watching them suffer. The information I have found on this web site has answered a lot of questions and concerns my whole family has been left with following the last few days. I thank you very much. Sincerely, TerRessa Curtius

I'm from: Tulsa, Oklahoma

Email: -

How I found the page: - I searched the web for flesh-eating

Feb 12, 1999 - 16:24

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Feb 12, 1999 - 16:24

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Feb 12, 1999 - 16:42

My name is: Mark Levine

Comments about the web site: My best friend was diagnosed with flesh eating disease early yesterday in Halifax. He has had surgery to remove the bacteria from his leg and they have taken off the skin on his leg from the knee down. He is one hell of a strong person and I am hoping he can get through this without losing his leg. Keep fighting Tommy, we are all praying for you. Love your buddy, Mark

I'm from: Toronto, Canada

Email: -

How I found the page: - I did a search on yahoo

Feb 13, 1999 - 14:08

My name is: Judi Jones

Comments about the web site: i am a survivor of necrotzing facsiitis.i spent 27 days in the hospital and had approx. 100 square inches of skin removed on my left lower back.side and abdomen. then skin grafts. I have been released from medical care and returned to work Feb.9,99 and am doing well. If you would like further info you can reach me at:theladyj@webtv.net and i will be glad to answer any questions.

I'm from: arlington,texas

Email: - theladyj@webtv.net

How I found the page: - through search

Feb 13, 1999 - 22:11

My name is: Ted S

Comments about the web site: Friend of mine apparently has this. Has been in hospital since Oct. for unrelated condition. Two weeks ago "boil" developed on back. Has had two surgeries to remove most of the skin on his back and is in critical condition.

I'm from: Gurnee, Illinois

Email: - taduk@aol.com

How I found the page: - My daughter found it with a web search and told me

Feb 14, 1999 - 13:47

My name is: Brian Swan

Comments about the web site: Very informative site with very good info. My cousin just passed away as a result of NF infection. Obviously early diagnosis and awareness would have helped. If more people become informed particularily in the medical community then perhaps similar tragedies can be averted.

I'm from: Cayuga, Ontario, Canada

Email: - swanhopkins@kwic.com

How I found the page: - Web search - Yahoo

Feb 15, 1999 - 04:42

My name is: Carlyle Cunningham

Comments about the web site: I Just received a call from my Mother on fwb 14, 1999 that my father had some sort of flesh eating bacteria and he had his left hand amputated. I have been much talk about this bacteria, so I am to gather all the info I can. Thank you for the web site.

I'm from: Hania, Crete , Greece

Email: - cc1946@cha.forthnet.gr

How I found the page: - Search program : www.yahoo.com

Feb 16, 1999 - 10:06

My name is: Nicolas Laracuente

Comments about the web site: I am working on a report on the "flesh eating" disease. I thought I should tell you this the ABSOLUTE best source of information on Necrotizing Fasciitis. Thank You so much.

I'm from: Clarkson, Kentucky USA

Email: - nlaracuente@yahoo.com

How I found the page: - through Go.com

Feb 17, 1999 - 01:02

My name is: Jan Simonds Hornback

Comments about the web site: I am re-visiting your site. My Mom, Jeanne Herrington passed away on June 18th of this last year after 62 days in the hospital with NNFF. All of this happened because she went to a Periodontist (I thought he was an Oral Surgeon, but he was not!) She fought, fought, fought to live! Incredibly strong. But not strong enough to survive this horrible disease. She had toxic shock syndrome which destroyed all of her vital organs. I miss her every day of my life, and still ask "Why???" It all happened so fast -- within a matter of a few hours, from the dental procedure to life support. Dear God, help these Professionals find a cure, increase the odds of survival. Give us in grief some peace with the passing of our dear ones. Please keep this website up. We need this! Thank you so very much.

I'm from: Arlington, Texas USA

Email: - jhornback@comp-action.com

How I found the page: - Searched "flesh eating bacteria" in Yahoo

Feb 17, 1999 - 09:49

My name is: Nicolas Laracuente

Comments about the web site: Like so many others I am also doing a report on NF for my Anatomy class. Few people have ever heard of this disease in my school, and I'm looking for some pictures to properly introduce this topic to them. Can anyone send me some pictures concerning this horrendous infection? Any and all assistance would greatly be appreciated.

I'm from: Clarkson, Kentucky

Email: - nlaracuente@yahoo.com

How I found the page: - Revisiting

Feb 17, 1999 - 18:41

My name is: Rachel Davis

Comments about the web site: Thanks for the very helpful information. This will be very helpful in my class presentation.

I'm from: Bassett, Virginia

Email: -

How I found the page: - Altavista Search

Feb 17, 1999 - 21:41

My name is: Paul and Judy

Comments about the web site: Judy and I lost our 15 year old(young) daughter to NF on Jan 02 1999. Not a day goes by that I don't think about Jessica and if only more people knew about NF.Jessica contracted NF from an open wound due to a car crash. It hit so fast its so hard to believe our baby is really gone. Please spread the word about NF!!!!

I'm from: Long Beach, CA

Email: - kickinit74@hotmail.com

How I found the page: - yahoo

Feb 18, 1999 - 19:37

My name is: Shawn Hannaford

Comments about the web site: On Feb 9, 99 I lost my brother-in-law, Dave, to this disease. As it seems with all the other cases, he too started out with flu like symptons and a sore arm. He was told during his brief sickness to go home, rest and take advil. Right up until his last few hours they (Doctors, specialist) were still puzzled as to what he was suffering from. They continued to treat his arm for blood clots, not actually looking into his arm until it was too late. It is down right scary to look at all the other cases and see that they are all the same, almost word for word. I am still in disbelief of all the doctors ignorance that were invovled in this tragdy. At 36, Dave will always be remembered by his beautiful wife, 4 wonderful young kids, loving parents and sister, parent in-laws, extended family and friends and of course his brother-inlaw.

I'm from: Burlington, ON. Canada

Email: - shawnh@netrover.com

How I found the page: - search

Feb 18, 1999 - 20:23

My name is: Kevin Poissant

Comments about the web site: Thank you for this information it will help me and my family get through this tough time with my father. We do not no the final outcome as of yet, but we pray it is positive.

I'm from: Windsor Locks, CT. USA

Email: - POISMAN@compuserve.com

How I found the page: - yahoo search engine

Feb 19, 1999 - 10:46

My name is: Miss Yvonne Moffat

Comments about the web site: Of great interest to me having first encountered this illnes as a staff nurse in ITU in Surrey.We have had two cases within the month.Both survived.

I'm from: Britain

Email: - ymoffat@hotmail.com

How I found the page: - search

Feb 21, 1999 - 13:18

My name is: Jack Jenkinson

Comments about the web site: For the love of my wife Terry

I'm from: Connecticut

Email: -

How I found the page: - from my wife

Feb 21, 1999 - 16:36

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Feb 22, 1999 - 14:58

My name is: erika

Comments about the web site: donna, i read your remarkable story about your disease.you were very strong even though you lost part of your hand you were still positive.the reason i saw your internet site was because i'm a student doing research on the flesh eating disease because i thought the matter could keep me interested wich it has.

I'm from: wellsboro usa

Email: -

How I found the page: -

Feb 22, 1999 - 19:02

My name is: Jen Stewart

Comments about the web site: This is a very informative and useful page. NF really interests me, and this has been very useful...THANX!! :)

I'm from: Ont, Cananda

Email: -

How I found the page: - Yahoo

Feb 22, 1999 - 20:39

My name is: Stephen Bettle

Comments about the web site: I'm just on here to get info for my science project. It's a good site.Thats all i have time to say.

I'm from: Hampton N.B Canada

Email: - dopehatgunn@yahoo.com

How I found the page: - Looked around

Feb 25, 1999 - 17:39

My name is: Paul Fasolas pfasolas@aol.com

Comments about the web site: On April 20, 1998 I pulled a groin muscle playing softball. It didn't bother me until 24 hours later when the pain became unbearable. After three trips to the emergency room and a diagnosis of a muscle pull or spazm over a three day period, my wife took me to another hospital. Within 15 minutes they knew what I had and began to try and stop it. Unfortunately this cost me my left leg at the hip.

I'm from: Orlando, Florida

Email: - pfasolas@aol.com

How I found the page: - from a friend

Feb 25, 1999 - 22:40

My name is: Catherine M. Austill

Comments about the web site: Bill Horvat befriended my father 25 years ago. He has been in and out of VA hospitals with various ailments during this time. He was diagnosed with NNFF about two weeks ago. Most of his back was removed, and his kidneys finally gave out on Monday, Feb. 22, 1999. After I found your web site, I was able to open up a whole new insight about the disease to my father and other family members. Thank you!

I'm from: Lindenhurst, IL USA

Email: - catherine.austill@usa.xerox.com

How I found the page: - alta vista search engine

Feb 26, 1999 - 23:08

My name is: Sandi Moreno, RN

Comments about the web site: I am so glad I have found your web page! I work at St Mary's burn and wound care center in Tucson, AZ. We see so many cases of Necrotizing fasciitis. The good news is we are successfully curing people. Most people don't even end up losing limbs, etc. It is definitely a serous problem and not to be taken lightly. I know of a couple people that are desperately fighting to live right now. They have been in the hospital for months. I am going to tell everyone about your web site and get your book as well. Keep up the good work. God Bless!

I'm from: Tucson, AZ

Email: - hecandsand@yahoo.com

How I found the page: - Looked up flesh eating bacteria

Feb 27, 1999 - 19:51

My name is: Karen Baer

Comments about the web site: My grandmother just died from this 3 days ago (2/23/99) and we had never heard of it. The hospital she was taken to apparently diagnosed her but couldn't go the surgery without transferring her to a different hospital. She never made it to surgery.

I'm from: Gilmanton, NH US

Email: - baer@nh.ultranet.com

How I found the page: - yahoo search

Feb 28, 1999 - 10:22

My name is: Doris A. Herrick

Comments about the web site: My mother died this week in Miami,FL on Wednesday, February 23, 1999. She was 79 years old and had been sick with ensephalitis, osteoporosis, high blood pressure for about 5-10 years. I am very upset because I live in Maine and had no knowledge of what was going on there. She had a home health nurse who was there on a regular basis, but didn't send her to her doctor until Tues. February 22.

I'm from: Poland, Maine 04274

Email: - DHERR50@aol.com

How I found the page: - My sister in law gave me the address.