Thank you for visiting the National Necrotizing Fasciitis Foundation. We hope that here you will discover all of the information you need to understand necrotizing fascitiis, more commonly known as the flesh-eating bacteria.
The NNFF community is comprised of tens of thousands of individuals from all over the world who have a shared experience having either survived NF, or lost a loved one to this highly fatal, devastating infection. We are strong, determined, compassionate, and passionate, and have dedicated our lives to bringing awarness and educating medical professionals and the public regarding NF.
We love our NNFF community! Amazing individuals who dedicate their time to help us get the word out regarding NF! If you are seeking support in your area, here is a great place to start. Click here.
The National Necrotizing Fasciitis Foundation Launches Referral Initiative to Provide New
Life-Saving Treatment to Victims of "Flesh-Eating" DiseaseJune 2, 2014 - URGENT In this program, the NNFF is connecting patients and their families from all
over the United States and other countries with Dr. John Crew, director of the Advanced Wound CareCenter at Seton Medical Center in Daly City, California. Dr. Crew then oversees the care of the patients, using a ground-breaking new treatment that he has discovered and developed for this rapidly spreading life-threatening disease.
John Crew, M.D.
Seton Medical Center
Daly City, California
Dr. Crew was nominated earlier this year for the Lister Legacy Prize for his groundbreaking, life and limb-safing treatment of NF. This award presented by the Royal College of Surgeons of Edinburgh to recognize contributions in controlling infections.
The new treatment and the referral initiative are crucial advances in the fight against this deadly threat, says Jacqueline Roemmele, executive director of the NNFF. Roemmele co-founded the organization in 1997 with fellow survivor, Donna Batdorff of Grand Rapids, Michigan, after her own years-long struggle with the disease and its aftermath, to offer information and emotional support to other patients and their families. But now, thanks to Dr. Crew's work, the NNFF can also direct patients to a treatment that dramatically improves outcomes, said Roemmele. "I'm heartbroken to think of the thousands of cases in the past where I could only offer emotional support," she said. "But now there is real hope. People are not only living, but they also are not losing any limbs at all. The world should sit up and take notice."